Kaye and her son Lazarus Banez are seen in an undated family handout photo. The mother, in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 6 classes in person by mid-November or face removal from the independent school. THE CANADIAN PRESS/HO-*MANDATORY CREDIT*

Kaye and her son Lazarus Banez are seen in an undated family handout photo. The mother, in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 6 classes in person by mid-November or face removal from the independent school. THE CANADIAN PRESS/HO-*MANDATORY CREDIT*

B.C. families of neurodiverse kids left scrambling before school starts: advocates

Advocates say they’d like to see school districts reaching out to families directly to build educational plans

Kaye Banez cried with relief after learning that her eight-year-old son Lazarus, who is on the autism spectrum, can enrol at his school remotely this fall.

The mother in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 3 classes in person by mid-November or face removal from the independent school.

The risk is too high for Lazarus to go back at this point in the COVID-19 pandemic, said Banez, since he relies on touch to sense the world around him and struggles with physical distancing.

“We’re also trying to keep everybody around him safe,” added Banez, noting she has diabetes and her kids’ grandparents on both sides of the family have compromised immune systems.

Banez said it was agonizing as her family worried they would be forced to register Lazarus and his six-year-old sister for home schooling. That would mean Lazarus would lose access to supports, such as speech and occupational therapies, that are paid for through funding that depends on enrolment in school or a distributed learning program — many of which are at capacity, she said.

After meeting with staff from her kids’ school and the Ministry of Education’s inclusive education division on Friday, Banez learned about provincial guidelines that stipulate school districts are required to make so-called “homebound” educational services available to students absent from the classroom because of medical and psychiatric reasons.

The expectation that schools work with families who need access to the homebound program is included in the province’s document guiding the response to the pandemic for students in kindergarten to Grade 12.

However, Banez said she is in touch with another mother on Vancouver Island whose child is on the autism spectrum and who hasn’t yet secured a remote learning option through their school.

“She’s done everything that I’ve done and the answer is still no. So, she’s doing now another step of saying she’s aware of this operational guideline,” said Banez, who serves as the vice president of the board of directors for AutismBC.

“It’s still very inconsistent. Even though the process that parents take to advocate for these accommodations is the same, there’s still children being left behind.”

READ MORE: B.C. school staff, older students required to wear masks in ‘high traffic areas’

It shouldn’t be up to parents to explicitly invoke their rights in order to ensure their kids can access the educational instruction and other supports they need, said Banez.

That’s especially true for parents who are newcomers to Canada and may struggle navigating back-to-school resources that are available primarily in English, she added.

“How could they possibly be calling government officials, school boards, principals, media, writing letters, reading operational guidelines (and) documents pages and pages long?” she asked.

The founder and chair of BCEdAccess, a volunteer-run organization that advocates for equitable access to education for complex learners and kids with diverse abilities, echoed Banez.

Tracy Humphreys said she’d like to see schools and districts reaching out to families directly to build educational plans that address their unique needs.

“The public system has had months now to be aware that there’s a pandemic and that September was coming and that they needed a better plan. It does feel like families, like children with disabilities, have been left out of that plan,” said Humphreys.

In an email, Ministry of Education representatives confirmed their expectation that school districts will be flexible and work with families on a case-by-case basis, including helping families of children with disabilities who aren’t comfortable sending their kids back to the classroom this fall.

But with school starting in a matter of days, Humphreys said she’s waiting for flexible options that meet provincial requirements and expectations to be fully implemented across the province.

“We’re seeing, you know, 60 school districts, plus independent schools, who are under the same direction from the Ministry of Education, responding in very different ways,” she said.

As for Lazarus, Banez said he’s excited to start what they call “mommy school” on Sept. 21.

Brenna Owen, The Canadian Press


Like us on Facebook and follow us on Twitter.

Want to support local journalism during the pandemic? Make a donation here.

CoronavirusEducationSchools

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Sign
The Stettler Pheasant Festival reflects on community impact

The festival has seen people visit from all over western Canada and into the United States

lite
Every year, the Maruk family puts up an amazing Christmas lights show

Display to run nightly starting around 5:30 p.m. until 10 p.m.

The Government of Alberta has identified 1,828 new cases and 15 new COVID-19-related deaths, which brings the provincial death toll to 590. (File photo)
Alberta identifies 1,828 new COVID-19 cases on Friday

Central zone has 1,251 active cases

Alberta RCMP. Black Press file photo.
Alberta RCMP enforces safe, sober driving this holiday season

‘Please plan ahead and find a safe means of transportation to and from your holiday destinations’

SARS-CoV-2 virus particles, which causes COVID-19, emerge from the surface of cells isolated from a patient in the U.S. and cultured in a lab in a 2020 electron microscope image. THE CANADIAN PRESS/AP-HO, National Institute of Allergy and Infectious Diseases - Rocky Mountain Laboratories
Alberta now has 17,743 active cases of COVID-19

Province now has 17,743 active cases

Idyllic winter scenes are part of the atmosphere of the holiday season, and are depicted in many seasonal movies. How much do you know about holiday movies? Put your knowledge to the test. (Pixabay.com)
QUIZ: Test your knowledge of holiday movies and television specials

The festive season is a time for relaxing and enjoying some seasonal favourites

Public Services and Procurement Minister Anita Anand responds to a question during a news conference in Ottawa, Monday, Oct. 26, 2020. Anand says as soon as she knows when the first dose of a COVID-19 vaccine will arrive on Canadian soil, she will share that information with the country. THE CANADIAN PRESS/Adrian Wyld
Negotiating contracts for vaccines in development needed flexibility: Anand

Health Canada officials are days, maybe even hours, away from approving the COVID-19 vaccine

Speaker of the House of Commons Anthony Rota rises in the House of Commons, Wednesday, May 13, 2020 in Ottawa. nbsp; THE CANADIAN PRESS/Adrian Wyld
Speaker Rota reflects on first year presiding over unprecedented virtual Parliament

‘It’s not what I signed up for but it is what it is’

Homeowners Cora and Alec Dion pose in the basement of their home in Fort McMurray, Alta., on May 8, 2020. More than seven months ago, the Dions were forced to flee Fort McMurray for the second time in four years as a spring flood threatened their home. THE CANADIAN PRESS/Greg Halinda
Fort McMurray residents still cleaning, considering options after spring flooding

‘It’s worse than just having water, because it’s ice mixed in with the water’

RCMP. (Phil McLachlan - Black Press Media)
Judge finds former Alberta Mountie not guilty of sexually assaulting colleague

Jason Andrew Tress, who is 34, was stationed in the northern Alberta community of Faust at the time of the alleged assault

A coal-fired power plant seen through dense smog from the window of an electric bullet train south of Beijing, December 2016. China has continued to increase thermal coal production and power generation, adding to greenhouse gas emissions that are already the world’s largest. (Tom Fletcher/Black Press)
Alberta set to retire coal power by 2023, ahead of 2030 provincial deadline

In 2014, 55 per cent of Alberta’s electricity was produced from 18 coal-fired generators

Montreal Alouettes’ Michael Sam is set to make his pro football debut as he warms up before the first half of a CFL game against the Ottawa Redblacks in Ottawa on Friday, Aug. 7, 2015. Sam became the first publicly gay player to be drafted in the NFL. He signed with the Montreal Alouettes after being released by St. Louis, but abruptly left after playing one game. THE CANADIAN PRESS/Justin Tang
Study finds Canada a ‘laggard’ on homophobia in sports

Among females, 44 per cent of Canadians who’ve come out to teammates reported being victimized

Nurse Kath Olmstead prepares a shot as the world’s biggest study of a possible COVID-19 vaccine, developed by the National Institutes of Health and Moderna Inc., gets underway Monday, July 27, 2020, in Binghamton, N.Y. U.S. biotech firm Moderna says its vaccine is showing signs of producing lasting immunity to COVID-19, and that it will have as many as many as 125 million doses available by the end of March. THE CANADIAN PRESS/AP-Hans Pennink
Canada orders more COVID vaccines, refines advice on first doses as cases reach 400K

Canada recorded its 300,000th case of COVID-19 on Nov. 16

Most Read